That's the best way to describe my appointment yesterday with the medical oncologist. Don't get me wrong, he gave me a lot of good info, but it was a lot.
Let's see where to begin...
I will have another PET scan in the next week or so to check everything.
Since we know there were cells left on the aorta I will be doing radiation again with Dr. C. I have an appointment to have the simulation done on Monday. At this appointment they will fit me for whatever I need to have this round of radiation. The Dr. today said this radiation round could be very quick, unlike the 33 treatments I had last time. I will obviously know more on Monday.
I will be seeing the sarcoma specialist at UCH as soon as his office calls to get me an appointment. I spoke with the Dr. today about possible chemo. Again, there is not a lot of research out there regarding sarcomas and chemo so the decision might be left up to me. I think if it is left up to me I am going to go ahead and do the chemo after the radiation.
I know I seem crazy to put myself through this if I'm not being forced to, but I know there are cancer cells floating within my body and I want them gone. Yes, we can kill the ones at the tumor site with radiation, but we thought we did that last time too. The only way to kill all the cells everywhere is to have the chemo through the blood stream. Depending on the kind of chemo it would be 3 week cycles for a total of 18 weeks. I would lose all my hair and be extremely sick but in the end it will be worth it if the cancer never comes back.
A lot of info to process but I'm dealing with it all OK. I'll share more info as I know it.
Thanks for the prayers, keep 'em coming, I'll need them.
The last first day of school
2 weeks ago
6 comments:
You, my dear, are so very brave. Debating about chemo is no fun, that's for damn sure, but if it means the cancer's totally gone, it will be worth it. I'm glad you're hanging in there. I will be thinking about you Monday. Always praying for you!
You are in my thoughts right now. I can't know what it is to face what you are facing...but I'll be cheering you on as you knock out those last few cells.
You are in my thoughts and prayers...I myself am a cancer survivor so I know it can be done. Will be praying for you daily. (chicks with no hair have less hair products to buy)
I can't stop thinking about you. The decisions you have ahead of you can't be easy to make, but you are so strong and I know you'll do what is best for you and your future. I'll continue to pray for you!!!!!!
I don't think you are crazy at all for doing everything possible to rid yourself of any cancer cells -- definitely brave, but not crazy. I am keeping you in my thoughts and prayers!! Take care.
I dont know a whole heap about the cancer that you have.
But i thnk its so wise of you to be making an educated decsion about chemo.
Alot of people shy away because its not pushed on them...
But if you feel its the right decsion for you to prevent horrible cancer coming back.
Then you should definatly do it.
I've seen both my parents through many different kinds of cancer treatment.
My mum didnt have chemo until her cancer was terminal..
may dad didnt have a huge shot of surviving his cancer... but he took almost a year of chemo and is in remission.
Even though you dont know me, im thinking of you during this hard time.
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